Are you misunderstood by health professionals ?

[Ginnytonic]

I might be interested if you still need someone.

[rubyslippers]

Hi there Ginnytonic - thanks for your interest in my research

Yes I am still looking - I need people who are willing to take part in a confidential online interview.

It really is confidential and anonymous your name or anyone elses name will not be mentioned. What you say will be treated with sensitivity and respect - the purpose of the reserach is to help improve the help available to parents. It is not to show parents in a negative light whatsoever, I am not judging your parenting in anyway. I want to help health professionals who deal with SED understand what it is like to live with SED. You can request a summary of the results to read.

I have some information to send you and a consent form that needs to filled in before you take part. If you are interested please send me your email address and we can get started. I have tried to send you a PM but your message box is full

Once again thank you, for getting in touch with me.
Caroline x

[rubyslippers]

I have now stopped recruiting people for this research.

I have been overwhelmed by the response to my plea for participants and would like to say a heartfelt thank you to everyone who contacted me for information and a special thank you to those who took part and those who have offered to help with my future research.

Anyone who is interested in taking part in future research, my email address is now carolinejordan@hotmail.co.uk

Caroline